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Down Syndrome Amongst Us

Category: Down Syndrome and Congenital Heart Defects

Issue #32 – Exploring…5Pminus

Posted on July 21, 2022July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome (five p minus), also known as Cat Cry Syndrome or Cri du Chat Syndrome. 5p- Syndrome is characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications.

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Issue #32 – Living With 5Pminus

Posted on July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

It was a particularly hectic time in my life – the week before Pesach, and my oldest son was engaged to be married right after Shavuos. He had just come home from yeshiva in Eretz Yisroel. With a full-time job, I was racing against the clock to have my Pesach ready.

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Issue #32 – When The YBL Shabbaton Is So Much More!

Posted on July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Yeshiva Bonim Lamokom’s annual Shabbaton at the Raleigh Hotel is truly the highlight of the year. It’s a weekend for students and staff to enjoy and bond in a beautiful Shabbos setting with lots of spirituality and fun for all.

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Issue #32 – Bringing Sara Home

Posted on July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Oftentimes things are orchestrated in Shomayim without our knowledge – things like bringing my youngest sister, who was born with Down syndrome, to Brooklyn to be near family.

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Issue #32 – The Bond That Ties – Summer Camp

Posted on July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Dear Counselor Yanky: Welcome to what I am sure will be a fantastic summer! Rabbi Klein cannot do anything less than superb, even if he tries…

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Issue #32 – Escaping Ukraine

Posted on July 21, 2022July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Sarah Sander asked me to write a few words. I could not refuse her. Life is so hectic and unsettled at the moment and to concentrate on putting thoughts on paper is a challenge. Four years ago, on the 26th of Sivan, our daughter, our sweetheart, Chaya Rivkah was born with Down syndrome.

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Issue #32 – Editor’s Message

Posted on July 21, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

My husband and I attended a Shabbaton a couple of months ago. The theme of this Shabbaton was not related to special needs at all. On Motzei Shabbos, during Melave Malka, one of the weekend’s most dynamic speakers got up to give his closing remarks.

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Issue #31 – Exploring Different…

Posted on March 2, 2022March 2, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects, Hirschsprung Disease

Life tends to take you places where you never intended to go. We were relatively young when we welcomed our fifth child into this world. He was a gorgeous little bundle. I held him close to me when suddenly this overwhelming feeling overcame me.

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Issue #31 – Hirschsprung Disease

Posted on March 2, 2022March 2, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects, Hirschsprung Disease

Hirschsprung disease (aganglionic megacolon) occurs when certain nerve cells in the wall of the colon do not form the right way when the fetus is growing.

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Issue #31 – Shimmy’s Story

Posted on March 2, 2022 adminDSPosted in All Articles, Down Syndrome and Congenital Heart Defects

Shimmy is a 26-year-old delightful young man who has Down syndrome.  He has been functioning at a very high level and was very involved in the day hab program he was attending. 

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