Issue #29 – B’Rosh Hashunah…Mi Yichyeh…

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As every year, the day is very hectic.  I sit for a few minutes though, reviewing in my head the events of the last few months. I am overwhelmed by the enormity of what has happened to me… my family…the world.  COVID-19 has overtaken everything we know as normal.  For my family, however, our personal journey through this mageifa gave us all the opportunity to witness, before our very eyes, nissim geluyim, the effects of the power of tefillah and the benevolence of the Ribbono Shel Olam.

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Issue #28 – Editor’s Message

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I write these words on the eve of the 18th yartzeit of my dear mother a’h. While the pain of her loss is still stinging, I take comfort in the fact that we were with her and held her hands down to the moment when she slipped into the World of Eternity.

It is so painful for me that in this very edition of DSAU, under the topic ‘Confrontation’ there is a lot of ‘dialogue’ about parents being forced by grandparents to give away their newborn with Down syndrome. How blessed am I and my family that our memories of our children’s grandparents zichronom livracha, are filled with love, longing and genuine warmth.

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Issue #28 – Looking Out for Our Eyes

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60% of children with Down syndrome have ophthalmic conditions that need to be identified and treated in a timely manner in order to prevent long-term visual disability. Optical rehabilitation must be considered especially important in people with Down syndrome to ensure physical and mental well-being and optimize self-dependence. The majority of typical children are born far-sighted, but most will not require glasses long term as their prescriptions commonly decrease to zero, as their eyes grow.

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Issue #28 – Sibling Rivalry: I Accept? I Accept?

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Nine months of a blissful and perfect pregnancy. Then came the day when our precious baby was born, which changed our lives forever! But seconds after birth they whisked him away, and there was a lot of whispering around our baby. Yes, it seemed like our worst fears were confirmed. Down syndrome. That was our introduction into the world of special needs. The main question was, how and what do we tell our other children? How were they going to deal with this information? Our oldest son was 18 years old and living in his own world of “perfection”.

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Issue #28 – The Paradoxical Relationship – My Imperfect Puzzle

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Life is like a puzzle.
We, as parents, are gifted with the duty to put all the pieces of our children’s lives together and make them fit seamlessly into a perfect picture.
Seems so simple.
Have you ever looked at those professional photographs of families taken outside in a garden, usually taken in the summer time?

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Issue #28 – Sibling Rivalry? You’ve Got To Be Kidding!

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Many people had approached me when they first heard the news that we were blessed with a child with Down syndrome. “You know…”, they would say, avoiding eye contact with me, “I hope you’re making the right decision… a child with Down syndrome can really ruin a family.”

Now, looking at my beautiful child, Shea, all I can do is nod with a bright smile and effusive glow. Indeed, it can change a family… and how!

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