http://5.pixata.co.uk/DownSyndromeAmongstUsRSS.xmlA magazine of chizuk and inspiration for parents and carers of people with Down Syndrome(c) 2009 Sarah Sandler and DSAUElaboration of the recommendations made in the previous issue, as well as other information designed to promote optimal health care for individuals with Down Syndromehttp://5.pixata.co.uk/Article4_Health-Care-Guidelines-for-Individuals-with-Down-Syndrome.aspxMon, 04 Aug 2008 00:00:00 GMTI Will Have to Apologize to Her Someday... a grandmother's mixed feelings about her special granddaughterhttp://5.pixata.co.uk/Article3_A-Chronology-of-Emotions.aspxTue, 05 Aug 2008 00:00:00 GMTThe mother of a newly adopted child with Down Syndrome asks for advicehttp://5.pixata.co.uk/Article1_The-honest-truth.aspxWed, 06 Aug 2008 00:00:00 GMTThe reality of advocating for your special needs childhttp://5.pixata.co.uk/Article2_Advocating-for-Your-Child-with-Special-Needs-Myths-and-Realities.aspxWed, 03 Dec 2008 00:00:00 GMThttp://5.pixata.co.uk/Article20_Up-Syndrome-Issue-13.aspxWed, 14 Jan 2009 00:00:00 GMThttp://5.pixata.co.uk/Article19_Smiles-of-an-Angel.aspxThu, 15 Jan 2009 00:00:00 GMThttp://5.pixata.co.uk/Article18_A-Meaning-Beyond.aspxFri, 16 Jan 2009 00:00:00 GMThttp://5.pixata.co.uk/Article16_Thirty-Moons-Mystery.aspxSun, 18 Jan 2009 00:00:00 GMTA moving and inspiring poem by the mother of a bar mitzva boy with Down Syndromehttp://5.pixata.co.uk/Article15_When-We-Wondered-III-Special-Nachas.aspxSun, 18 Jan 2009 00:00:00 GMTThoughts on commonly used, if ill contemplated expressionshttp://5.pixata.co.uk/Article9_Who-Are-You-Calling-Stupid.aspxSun, 18 Jan 2009 00:00:00 GMTA light-hearted view of some of the labels and names people give to special childrenhttp://5.pixata.co.uk/Article6_A-Humorous-Look-at-Law-and-Disorders.aspxSun, 18 Jan 2009 00:00:00 GMTHow does one write about a Tati/Zeidy whose first yahrtzeit is approaching? How do we stop the flow of tears and ease the crushing pain in our hearts? How does one gain comfort and solace by the beauty of the memories Zeidy Gluck created during his lifetime and especially so during his grandparenting years?http://5.pixata.co.uk/Article10_Zeidy-Gluck-zl.aspxSun, 18 Jan 2009 00:00:00 GMThttp://5.pixata.co.uk/Article17_IEPs-According-to-Dr-Seuss.aspxSun, 18 Jan 2009 00:00:00 GMTA poem written by the uncle of a barmitzva boy with Down Syndromehttp://5.pixata.co.uk/Article14_When-We-Wondered-II.aspxSun, 18 Jan 2009 00:00:00 GMTA survey of mothers in the January issue of Pediatrics found that physicians remain overwhelmingly negative in communicating a diagnosis of Down syndrome in newborn infants. Mothers offer ten specific recommendations for improvement.http://5.pixata.co.uk/Article8_Mothers-Speak-Physicians-Often-Fall-Short-When-Delivering-a-Down-Syndrome-Diagnosis.aspxSun, 18 Jan 2009 00:00:00 GMTWritten by the mother of a Bar Mitzvah boy with Down syndrome and sent along with the simcha invitationshttp://5.pixata.co.uk/Article13_When-We-Wondered.aspxSun, 18 Jan 2009 00:00:00 GMTI have a niggling question in the back of my mind. What if he isn’t one of these high functioning wonder DS kids? What if he doesn’t learn to play three instruments? What if he can’t be mainstreamed or hold down a regular job, or learn all of Tanach...http://5.pixata.co.uk/Article11_Thoughts.aspxSun, 18 Jan 2009 00:00:00 GMTContrary to popular belief, it's OK for men to cry. Don't feel you're a failure as a Dad if you do.http://5.pixata.co.uk/Article12_Hey-Dads-Some-Thoughts-on-Men-and-Grief-.aspxSun, 18 Jan 2009 00:00:00 GMTQuestions asked to Etty Terebelohttp://5.pixata.co.uk/Article7_Ask-The-Professional.aspxSun, 18 Jan 2009 00:00:00 GMTENTERTAINERS' AFFLICTION?http://5.pixata.co.uk/Article70_Up-Syndrome.aspxWed, 04 Mar 2009 00:00:00 GMTIt was the best of times and the worst of timeshttp://5.pixata.co.uk/Article99_Editors-Message.aspxWed, 04 Mar 2009 00:00:00 GMTOnce upon a time in the city of New York, there were 'three' Twin Towers.http://5.pixata.co.uk/Article72_Grandparents-Page.aspxWed, 04 Mar 2009 00:00:00 GMTEX-ACTLY!!!http://5.pixata.co.uk/Article71_Up-Syndrome.aspxWed, 04 Mar 2009 00:00:00 GMTn order to realistically discuss the pros and cons of total inclusion, several points must be considered.http://5.pixata.co.uk/Article67_INCLUSION.aspxWed, 04 Mar 2009 00:00:00 GMTOur key question as we initiate a new millennium is "How do we live with one another?"http://5.pixata.co.uk/Article66_Inclusion.aspxWed, 04 Mar 2009 00:00:00 GMTDANGER! http://5.pixata.co.uk/Article69_Up-Syndrome.aspxWed, 04 Mar 2009 00:00:00 GMTI recently met a long-time acquaintance from our circle of “Down syndrome friends.”http://5.pixata.co.uk/Article68_INCLUSION.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarahhttp://5.pixata.co.uk/Article65_INCLUSION-Still-Smouldering.aspxWed, 04 Mar 2009 00:00:00 GMTBefore I came to Hollandhttp://5.pixata.co.uk/Article55_Holland-Before-and-After.aspxWed, 04 Mar 2009 00:00:00 GMTA certain man planted a rose and watered it faithfully, and before it blossomed, he examined it.http://5.pixata.co.uk/Article56_The-Rose-and-The-Thorn.aspxWed, 04 Mar 2009 00:00:00 GMTIt wasn't much of a surprise. His older brother had gotten over his chicken pox the week before. http://5.pixata.co.uk/Article57_Chicken-Pox-Are-Normal.aspxWed, 04 Mar 2009 00:00:00 GMTSeveral features on ultrasound scans that doctors thought were warning signs of Down syndrome are almost always harmlesshttp://5.pixata.co.uk/Article54_Study-Casts-Doubt-on-Down-Syndrome-Screening.aspxWed, 04 Mar 2009 00:00:00 GMTChiddushei Harim teaches that the Almighty has many treasure chests in Heaven, all filled with an ample supply of every type of Beracho.http://5.pixata.co.uk/Article51_Special-Education-for-Special-Children.aspxWed, 04 Mar 2009 00:00:00 GMTI met two families today.http://5.pixata.co.uk/Article52_Two-Families.aspxWed, 04 Mar 2009 00:00:00 GMTIn 1933, when I was born and placed for adoption, the system had no regard for the fact that I had a Jewish mother.http://5.pixata.co.uk/Article53_An-Empty-Chair.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarah Sanderhttp://5.pixata.co.uk/Article62_Mailbox.aspxWed, 04 Mar 2009 00:00:00 GMTPurim Poemhttp://5.pixata.co.uk/Article63_On-the-Lighter-Side.aspxWed, 04 Mar 2009 00:00:00 GMTMoishey suffers from chronic sinusitis.http://5.pixata.co.uk/Article64_It-Worked-For-Us.aspxWed, 04 Mar 2009 00:00:00 GMTYour child has been diagnosed as severely brain damaged.http://5.pixata.co.uk/Article61_Light-Sound-Therapy.aspxWed, 04 Mar 2009 00:00:00 GMTMoishey is our second child. http://5.pixata.co.uk/Article58_Whats-In-A-Name.aspxWed, 04 Mar 2009 00:00:00 GMTFirst, 'Yasher Koach' on the beautiful, encouraging, positive publication "Down Syndrome Amongst Us".http://5.pixata.co.uk/Article59_Please-Hashem-Can-WE-Have-Some-More.aspxWed, 04 Mar 2009 00:00:00 GMTDear Editorhttp://5.pixata.co.uk/Article60_Magic-Moment-Weekend-Retreat.aspxWed, 04 Mar 2009 00:00:00 GMTWhen G-d measures our worth-it's said,http://5.pixata.co.uk/Article85_Gds-Measurements.aspxWed, 04 Mar 2009 00:00:00 GMTA normal child is normalhttp://5.pixata.co.uk/Article86_A-Special-Specialty.aspxWed, 04 Mar 2009 00:00:00 GMTIt was such a bitter pillhttp://5.pixata.co.uk/Article87_Our-Special-Vitamin.aspxWed, 04 Mar 2009 00:00:00 GMTDown syndrome was first described in 1866 by John Langdon Downhttp://5.pixata.co.uk/Article82_Targeted-Nutritional-Intervention-TNI.aspxWed, 04 Mar 2009 00:00:00 GMTI know of only one way to answer the question ofhttp://5.pixata.co.uk/Article83_Positive-Changes-Brought-About.aspxWed, 04 Mar 2009 00:00:00 GMTA multitude of flowers grew in the earth's gardenhttp://5.pixata.co.uk/Article84_Poem.aspxWed, 04 Mar 2009 00:00:00 GMTWhen a child comprehends whatever you're sayinghttp://5.pixata.co.uk/Article88_Thank-Hashem.aspxWed, 04 Mar 2009 00:00:00 GMTI am not perfecthttp://5.pixata.co.uk/Article92_POETRY-Declaration-of-Imperfection.aspxWed, 04 Mar 2009 00:00:00 GMTA feeble cry shatters the still airhttp://5.pixata.co.uk/Article93_A-Feeble-Cry.aspxWed, 04 Mar 2009 00:00:00 GMTA home is a househttp://5.pixata.co.uk/Article94_A-Home-My-Home.aspxWed, 04 Mar 2009 00:00:00 GMTPurim is a time of joyous commemoration, http://5.pixata.co.uk/Article89_Purim-Poem.aspxWed, 04 Mar 2009 00:00:00 GMTI used to pass the child in the streethttp://5.pixata.co.uk/Article90_The-Way-It-Used-TO-Be.aspxWed, 04 Mar 2009 00:00:00 GMTA sleepless night, my eyes are sorehttp://5.pixata.co.uk/Article91_The-Pain-of-Rejection.aspxWed, 04 Mar 2009 00:00:00 GMTMy father, Rabbi Shimon Schwab, left a daily diary spanning the last 43 years of his lifehttp://5.pixata.co.uk/Article76_Grandparents-Page.aspxWed, 04 Mar 2009 00:00:00 GMTQ. My 4-year-old son who has Down syndromehttp://5.pixata.co.uk/Article77_Questions-and-Answers-on-Speech-Development.aspxWed, 04 Mar 2009 00:00:00 GMTWhen the first spark of incentive was kindled in my mindhttp://5.pixata.co.uk/Article98_Editorial-Part-2.aspxWed, 04 Mar 2009 00:00:00 GMTAn ordinary Monday. My daughter's due date was imminent.http://5.pixata.co.uk/Article73_My-Daughter-My-Teacher.aspxWed, 04 Mar 2009 00:00:00 GMTFor years, my in-laws (not yet frum) had been warning ushttp://5.pixata.co.uk/Article74_Grandparents-Page.aspxWed, 04 Mar 2009 00:00:00 GMTLet me introduce myself. I am a "Bubby"http://5.pixata.co.uk/Article75_Grandpartents-Page.aspxWed, 04 Mar 2009 00:00:00 GMTIt is with a blessing and a prayer on my lipshttp://5.pixata.co.uk/Article97_Editorial.aspxWed, 04 Mar 2009 00:00:00 GMTI don't write as a professional, nor am I a special educator.http://5.pixata.co.uk/Article79_And-In-My-Humble-Opinion.aspxWed, 04 Mar 2009 00:00:00 GMTThe Greek philosopher Aristotle was among the first to formulate laws of mental processes.http://5.pixata.co.uk/Article80_Reflection-on-Kol-Hamekayem-Nefesh-Achas-MeYisroe.aspxWed, 04 Mar 2009 00:00:00 GMTDANGER! Moishey was in bed, ready for a good's night sleep,http://5.pixata.co.uk/Article81_The-Remedy.aspxWed, 04 Mar 2009 00:00:00 GMTOne day a friend came over to mehttp://5.pixata.co.uk/Article96_Special-Shimmy.aspxWed, 04 Mar 2009 00:00:00 GMTOne of the biggest challenges in my life is dealing with my brotherhttp://5.pixata.co.uk/Article95_Shaya.aspxWed, 04 Mar 2009 00:00:00 GMTThe ability to communicate is a learned process that begins at birthhttp://5.pixata.co.uk/Article78_Speech-Language-Communication-and-Down-Syndrome.aspxWed, 04 Mar 2009 00:00:00 GMTThe following is a letter written by the Lubavitcher Rebbe zt’l to the director of an organization dealing with mentally retarded citizens.http://5.pixata.co.uk/Article50_Letter-From-The-Rebbe.aspxWed, 04 Mar 2009 00:00:00 GMTCompilation of tips, ideas and approaches suggested and utilized by a group of speech and language professionals.http://5.pixata.co.uk/Article116_101-Ways-to-Help-The-Child-Learn-to-Talk.aspxWed, 04 Mar 2009 00:00:00 GMTDear Etty: At which point in my child's life (he has Down syndrome) can I safely sayhttp://5.pixata.co.uk/Article117_Ask-the-Professional.aspxWed, 04 Mar 2009 00:00:00 GMTParents often feel lonely and isolated.http://5.pixata.co.uk/Article118_A-Life-Time-of-Challenge.aspxWed, 04 Mar 2009 00:00:00 GMTDear Mrs. Sanders, Last Friday night, in Shul, I was sitting next to the fatherhttp://5.pixata.co.uk/Article113_Rabbi-Saul-Klein.aspxWed, 04 Mar 2009 00:00:00 GMTDear Editor: Subject: “We've Joined the Family”http://5.pixata.co.uk/Article114_Weve-Joined-the-Family.aspxWed, 04 Mar 2009 00:00:00 GMTBy giving us children to raise, G-d has entrusted us with a unique gift.http://5.pixata.co.uk/Article115_Disabilities-Challenges-and-Hidden-Giftedness.aspxWed, 04 Mar 2009 00:00:00 GMTEliyahu HaNavi and Rabbi Yehoshua ben Levi stopped to spend the nighthttp://5.pixata.co.uk/Article119_When-Things-Dont-Turn-Out-The-Way-Youd-Wish-Them.aspxWed, 04 Mar 2009 00:00:00 GMTThe following is an e-mail sent to Flora Abramsonhttp://5.pixata.co.uk/Article123_A-Keshet-MomentAn-Electrifying-Moment.aspxWed, 04 Mar 2009 00:00:00 GMTIn June 1996, a federal appeals court issued a major decision that could have important ramifications for special education services in yeshivas. http://5.pixata.co.uk/Article21_Special-Education-Alert.aspxWed, 04 Mar 2009 00:00:00 GMTIndividuals with Down syndrome have small facial bone structures and shallow or absent sinus cavities. They also have a small airway with a shallow high-arched palate. http://5.pixata.co.uk/Article22_Recurrent-Upper-Respiratory-Infections-in-Children.aspxWed, 04 Mar 2009 00:00:00 GMTWhen Mommy brought our little sister Mindy home, we all knew she was special.http://5.pixata.co.uk/Article120_A-Different-Seder.aspxWed, 04 Mar 2009 00:00:00 GMTDear Etty: This might sound like a silly question, but what does 'hypotonia' mean.http://5.pixata.co.uk/Article121_Ask-the-Professional.aspxWed, 04 Mar 2009 00:00:00 GMTIt should have been an ordinary bus ride on an ordinary day.http://5.pixata.co.uk/Article122_Encounter-on-the-B11.aspxWed, 04 Mar 2009 00:00:00 GMTWas that a pimple that appeared, in all its gloryhttp://5.pixata.co.uk/Article103_Editors-Message.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarah amush: Thank you for your uniquely special publicationhttp://5.pixata.co.uk/Article104_Letter-1.aspxWed, 04 Mar 2009 00:00:00 GMTDear Suri: Just got a look at your latest issuehttp://5.pixata.co.uk/Article105_Letter-2.aspxWed, 04 Mar 2009 00:00:00 GMTI'm still chuckling over this morning's breakfast episodehttp://5.pixata.co.uk/Article100_Editorial-Message.aspxWed, 04 Mar 2009 00:00:00 GMTIt is with a blessing and a prayer on my lipshttp://5.pixata.co.uk/Article101_Editorial.aspxWed, 04 Mar 2009 00:00:00 GMTWhen the first spark of incentive was kindled in my mindhttp://5.pixata.co.uk/Article102_Editorial.aspxWed, 04 Mar 2009 00:00:00 GMTDearest Surika: Ever since you began publishing your famous magazinehttp://5.pixata.co.uk/Article106_Letter-3.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarah, I can't thank you enough for sharing with me the beautiful journalhttp://5.pixata.co.uk/Article110_Letter-3.aspxWed, 04 Mar 2009 00:00:00 GMTDear Mrs. Sander: I have neither a child nor a relative with Down syndromehttp://5.pixata.co.uk/Article111_Letters.aspxWed, 04 Mar 2009 00:00:00 GMTIt is a sign of a mature Torah communityhttp://5.pixata.co.uk/Article112_A-Letter-from-Rabbi-Yaakov-Perlow-Novominsker-Rav.aspxWed, 04 Mar 2009 00:00:00 GMTDear Mrs. Sander: I have a brother who has Down syndromehttp://5.pixata.co.uk/Article107_Letter-4.aspxWed, 04 Mar 2009 00:00:00 GMTHello. I am a 22-year-old college student who is a moderate Jewhttp://5.pixata.co.uk/Article108_Letter-1.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarah Sander: I have just finished reading your publication from front to backhttp://5.pixata.co.uk/Article109_Letter-2.aspxWed, 04 Mar 2009 00:00:00 GMTWhat is Down's Syndrome? Down's Syndrome is a chromosomal disorder which causes delays in physical and intellectual development. http://5.pixata.co.uk/Article23_Answer-to-the-Most-Common-Questions.aspxWed, 04 Mar 2009 00:00:00 GMTDear Sarah Sander: I enjoyed your latest magazine very much, especially the picture of your Bar Mitzvah son.http://5.pixata.co.uk/Article40_Different-Situations.aspxWed, 04 Mar 2009 00:00:00 GMTWhen our son Shlomo was born, our other children were too young to understand the implications of being a sibling of a child with Down syndrome.http://5.pixata.co.uk/Article41_My-Children-Have-Learned.aspxWed, 04 Mar 2009 00:00:00 GMTWhen an ultrasound during my fifth month of pregnancy indicated that I was carrying a healthy baby girl, I was ecstatic.http://5.pixata.co.uk/Article42_Lets-Get-Real.aspxWed, 04 Mar 2009 00:00:00 GMTHow to Respond to Those Hurtful Comments & Questions http://5.pixata.co.uk/Article37_How-to-Respond-to.aspxWed, 04 Mar 2009 00:00:00 GMTDear Mrs. Sanderhttp://5.pixata.co.uk/Article38_Transition-How-Much-Pain.aspxWed, 04 Mar 2009 00:00:00 GMTI wonder why… Nobody would be so coarse To tell a feuding couple to divorce. http://5.pixata.co.uk/Article39_I-Wonder-Why.aspxWed, 04 Mar 2009 00:00:00 GMTOur daughter Tehilla was born on December 1, 1993. http://5.pixata.co.uk/Article43_Tehilla.aspxWed, 04 Mar 2009 00:00:00 GMTDear Mrs. Sander, amush, http://5.pixata.co.uk/Article47_Confrontations.aspxWed, 04 Mar 2009 00:00:00 GMTYears ago, when my child was first diagnosed, I had a friend who ran a `shmiras haloshon` group and also had a special child. http://5.pixata.co.uk/Article48_To-All-Special-Mothers.aspxWed, 04 Mar 2009 00:00:00 GMTI was expecting my sixth child and my family, especially the children, were very excited. http://5.pixata.co.uk/Article49_We-Give-The-Love-We-Got.aspxWed, 04 Mar 2009 00:00:00 GMTIf I were to know two years ago what lay in the future - I surely would not have believed it myself.http://5.pixata.co.uk/Article44_Confrontation-4.aspxWed, 04 Mar 2009 00:00:00 GMTSome of you may stare http://5.pixata.co.uk/Article45_Unique-Yet-Special.aspxWed, 04 Mar 2009 00:00:00 GMTYour birth brought us closerhttp://5.pixata.co.uk/Article46_Two-Words.aspxWed, 04 Mar 2009 00:00:00 GMTCongenital heart disease (the presence of a structural heart defect at birth) occurs in 40 - 50% of children with Down syndrome and cardiac abnormalities are probably the most common malformations seen in trisomy 21.http://5.pixata.co.uk/Article27_The-Heart-and-Children-with-Down-Syndrome.aspxWed, 04 Mar 2009 00:00:00 GMTWhile people with Down syndrome have a high chance of developing childhood leukemia, a new study shows they have only half the normal lifetime risk of getting other kinds of cancer.http://5.pixata.co.uk/Article28_Down-Syndrome-Cancer-Link-Studied.aspxWed, 04 Mar 2009 00:00:00 GMTIn preparation for the numerous children aging out of preschool and into school age programs and for those school age children who will be transitioning to another placement this year, in this issue we will explore tips on what to look for when visiting a school placement and how to accept or reject a school placement.http://5.pixata.co.uk/Article29_For-Our-Information.aspxWed, 04 Mar 2009 00:00:00 GMTEncouraging Speech: Ever see the blinders that are placed on either side of a horse's eyes so that they don’t become distracted during a race? http://5.pixata.co.uk/Article24_It-Worked-For-Us.aspxWed, 04 Mar 2009 00:00:00 GMTAtlanto-axial instability (AAI) is a condition that affects approximately 15% of people with Down Syndrome.http://5.pixata.co.uk/Article25_Atlantoaxial-Instability.aspxWed, 04 Mar 2009 00:00:00 GMTWith annual reviews coming up and children transitioning from preschool to school age there is no doubt that every one of us can compile our own exhaustive list of questions about how to deal with the Board of Education.http://5.pixata.co.uk/Article26_For-Our-Information.aspxWed, 04 Mar 2009 00:00:00 GMTTwo hours ago I delivered a beautiful baby girl with Down syndrome. When she came out, she seemed normal to me. I asked, Is she normal?http://5.pixata.co.uk/Article30_Dont-Let-Me-Fall.aspxWed, 04 Mar 2009 00:00:00 GMTHere are some common situations we face, and possible causes and/or reactions:http://5.pixata.co.uk/Article34_Dealing-with-Others.aspxWed, 04 Mar 2009 00:00:00 GMTOne of our most beautiful mitzvos is burying the dead, This mitzva is called a 'chesed shel emes' because it is a merit that can never be repaid by the recipient of this act.http://5.pixata.co.uk/Article35_Is-Raising-A-Down-Syndrome-Child-a-Chesed-Shel-Eme.aspxWed, 04 Mar 2009 00:00:00 GMTDo you know the difference?http://5.pixata.co.uk/Article36_Retarded-vs-Crazy.aspxWed, 04 Mar 2009 00:00:00 GMTAny first-born child causes an upheaval in the house. There are many changes to get used to. A special child caused an especially big upheaval. http://5.pixata.co.uk/Article31_Surprise.aspxWed, 04 Mar 2009 00:00:00 GMTIt was the winter of ‘88-’89 and my sister and I were expecting babies. The excitement was tremendous; both our previous "babies" were well over 3 years old.http://5.pixata.co.uk/Article32_Hashgacha-Pratis-My-Own-Experience.aspxWed, 04 Mar 2009 00:00:00 GMTOriginally, our reason for taking this trip was a severe lingering cough that was racking my body for over two months. It was also a good opportunity to get away from it all. Yes, I am very honest.http://5.pixata.co.uk/Article33_Greeting-From-Miami-Beach.aspxWed, 04 Mar 2009 00:00:00 GMT